Interstitial Cystitis update. 

Hello World, friends, family and my wonderful followers! I have been procrastinating this post as some people take my IC updates as for sympothy rather than to spread awareness.. and that is fine I supposed but my only purpose of these posts is to help and show others that they are not alone. 

Before diagnosis I was getting very depressed wondering what in the world was I doing wrong? Why does this keep happening? And then you really start to freak yourself out with Googling symptoms and WebMD… do NOT do that! I didn’t jump to conclusions but there was a very big worry that it may have been cancer, as blood in the urine for long amount of time usually is Kidney or Bladder Cancer stymptoms. 

Thankfully I didn’t have to go down that road because let’s just say… I’m not that strong of a person to be honest! Anywho, after diagnosis I decided to no longer stay at my job due to how badly my body reacts to my IC Flare. I have a flare at least once every other week and it lasts around 7 days if not longer. 

During a flare you will experience

  • Burning during urination 
  • Frequent urination 
  • Pain in pelvic and abdominal area 
  • Fever and chills 
  • Pressure in abdominal area
  • Blood in urine 
  • Upset stomach 
  • Fatigue 

I typically experience these symptoms regularly and I am learning how to cope with this condition. 

If you have reacurring symptoms listed below ask your doctor or urologist to check for Interstitial Cystitis as this syndrome is real and it can be equal to the pain of a dialysis patient. 

All in all just please know that you are not alone. There are support groups that you can join and even just having one friend who can relate is very helpful! 

I am a open to answering any questions you may have and I really hope this post is helpful to anyone dealing with this syndrome or helps you push further to getting a diagnosis! 

I hope you all are having a wonderful week and I will be back very soon. 

Thank you for all of your onpouring support it is not unnoticed or unappreciated. 

– Kasey Gruenewald